Saturday, 8 May 2010

The bad and the good...

Let's face it - having MS sucks. I remember once, years ago when I was not long diagnosed, the MS Society sponsored the horoscopes in the paper one day. Every star sign had something along the lines of "today will be unpredictable".

That is the bottom line with MS - you don't know what is going to happen next... what fresh way your body is going to betray you.

This week I've been back in bed. I woke Tuesday with horrible spasms of pain in my legs. This lasted into Wednesday. I thought things were getting better so I decided to get up. Mistake. Pain came back.

At the same time my numb right hand, which I thought was getting better, is pretty much completely numb and useless again.

Have been resting and sleeping trying to get better... I really need to get back to work.

Tonight, being Friday, is injection night, time for my weekly beta-interferon dose. I've dosed up on paracetmol (it is a cruel twist of fate that I am allergic to the far more effective aspirin and ibuprofen). I'm hoping that the side effects are helping (if not causing) the new crop of symptoms; extreme dizziness, which I can manage by lying down; and bizzare sensory disturbances, I feel like bugs are crawling on me. I have gone as far as to try and brush them off... it is freaking me out as I have a bit of a bug phobia!

That all is the 'bad' from the title. The good (yep, you can just about find a positive in MS) is the amazing people you meet online through MS blogs. Catching up a weeks worth of reading I realised that there are some truly inspiring people out there.

I have no idea how to post links in this post using my iPhone. Tomorrow I'll post from my laptop and include them. Reading about other people's experiences makes you feel less alone: thanks to Herrad, Carole, Amelia, Jodi and Steve (amongst others) for sharing your lives.

- Posted using BlogPress from my iPhone


  1. Hope you are feeling better!

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    David Keating
    Department of Communication
    University of Arizona