Thursday, 21 April 2011

Here we go again

The five day course of steroids has made no difference to my ON. Off we go on the tapering course then... 147 tablets (and the rest) over the next three weeks. Fingers crossed!

Monday, 4 April 2011


It seems that my limitations are more limited than I previously thought. I had a busy weekend... on Friday I was at St Paul's Cathedral; on Saturday I had to take the car to get its MOT (which I had forgotten about and the garage rang to remind me); on Sunday it was off to see my Mum for Mother's Day (lucky my brother was driving). No rest at all really.

And last night and today I suffered. I woke at 3am feverish... drenched in sweat but freezing cold. I asked Rich to get me a hot water bottle, at which moment he pointed out that I probably wasn't fit for work. As my hands were also in agonising pain I couldn't see how I would hold the crutches and was forced to agree with him. I went back to sleep with my hot water bottle... and didn't wake again until nearly lunchtime. I dozed for most of the rest of the day until about 3 or 4 when I realised that I felt much better. I was no longer feverish and my hands were a bit better (although still rather claw like).

The Law of Spoons must be observed. Out of the three days that form my weekend if two of them are to be filled with activity one of them must be filled with sleep and bed-rest... otherwise disaster and flare-ups of old symptoms will follow. As the meercats would say "Simples".